Please use this identifier to cite or link to this item: https://hdl.handle.net/20.500.12530/29346
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dc.contributor.authorBygum, Anette
dc.contributor.authorBusse, Paula
dc.contributor.authorCaballero, Teresa
dc.contributor.authorMaurer, Marcus
dc.date.accessioned2019-06-28T15:49:50Z-
dc.date.available2019-06-28T15:49:50Z-
dc.date.issued2017
dc.identifier.citationFront Med (Lausanne).2017;(4):212
dc.identifier.issn2296-858X
dc.identifier.urihttps://hdl.handle.net/20.500.12530/29346-
dc.description.abstractHereditary angioedema (HAE) is a group of rare, potentially life-threatening, and frequently debilitating diseases characterized by recurrent, and often with an unpredictable onset, of swelling attacks. HAE is heterogeneous, with considerable differences between its subtypes, patients, and even within the same patient over time. During the past few years, several new on demand and prophylactic therapies have become available for HAE, allowing for individualized treatment. Therefore, to optimize HAE management, it is important to determine in all patients, the severity of their attacks, their disease activity, its therapeutic control, and its impact on their quality of life. In this manuscript, we review the existing tools to assess these aspects of HAE management, many of which are patient-reported outcome instruments. Also, we outline the current gaps of knowledge and what tools are still missing to allow for a comprehensive assessment of all patients with HAE including children.
dc.language.isoeng
dc.rightsopenAccess-
dc.subjectactivity
dc.subjectburden
dc.subjectcontrol
dc.subjecthereditary angioedema
dc.subjectimpact
dc.subjectpatient-reported outcomes
dc.subjectquality of life
dc.subjectseverity
dc.titleDisease Severity, Activity, Impact, and Control and How to Assess Them in Patients with Hereditary Angioedema.
dc.typeArtículo
dc.identifier.pubmedID29255709
dc.format.volume4
dc.format.page212
dc.identifier.journalFrontiers in medicine
dc.identifier.doi10.3389/fmed.2017.00212
dc.identifier.pmcPMC5722805
dc.pubmedtypeJournal Article
dc.pubmedtypeReview
Appears in Collections:Fundaciones e Institutos de Investigación > IIS H. U. La Paz > Artículos
Hospitales > H. U. La Paz > Artículos

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